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The Delta Research and Educational Foundation (DREF) joins NIH in launching the All of Us Research Program to advance precision medicine

On May 6, the National Institutes of Health will open national enrollment for the All of Us Research Program - a momentous effort to advance individualized prevention, treatment and care for people of all backgrounds-in collaboration with the Delta Research and Educational Foundation (DREF) and other partners.
People ages 18 and older, regardless of health status, will be able to enroll. The official 

launch date will be marked by community events in cities across the country as well as an online event. DREF, along with NIH' s National Library of Medicine, will cohost an event in

Kansas City,MO on Sunday, May 6.  DREF President, Carolyn E. Lewis, will be one of 

the featured speakers at the launch event.

 

Volunteers will join more than 25,000 participants across the United States who have

already enrolled in All of Us as part of a yearlong beta test to prepare for the program' s

national launch. The overall aim is to enroll 1 million or more volunteers and over sample communities that have been underrepresented in research to make the program  the largest, most diverse resource of its kind.

 

"The time is now to transform how we conduct research-with participants as partners-to shed new light on how to stay healthy and manage disease in more personalized ways. This is what we can accomplish through All of Us," said NIH Director Francis S. Collins, M.D., Ph.D.

 

Precision medicine is an emerging approach to disease treatment and prevention that considers differences in people's lifestyles, environments and biological makeup, including

 genes. By partnering with 1million diverse people who share information about themselves

 over many years, the All of Us Research Program will enable research to more precisely prevent and treat a variety of health conditions.

 

" All of us are unique, but today we live mostly in an era of ‘one-size-fits-all’ medicine”, said Eric Dishman, director of the A// of Us Research Program. "I'm alive today because of precision medicine and I think everyone deserves that same opportunity no matter the color of your skin, your economic status, your age or your sex or gender. In other words, it will truly take all of us."

 

All of Useeks to transform the relationship between researchers and participants, bringing them together as partners to inform the program' s directions, goals and responsible return of research information. Participants will be able to access their own health information, summary

data about the entire participant community and information about studies and 

findings that come from All of Us.

 

DREF President Lewis stated that the Foundation and its collaborative partners,

Delta Sigma Theta Sorority, Inc. and the National Council of Negro Women, are

committed to conducting awareness and outreach among African Americans to  promote the 1 in a million campaign. "The All of Us Research Program offers a vital opportunity to increase the number of African American participants in biomedical research and lead a path towards closing the health disparity gap," added Lewis.

 

Participants are asked to share different types of health and lifestyle information, including through online surveys and electronic health records (EHRs),which will 

continue to be  collected over the course of the program.  

 

At different times over the coming months and years, some participants will  be asked to visit a local partner site to provide blood and urine samples and to have basic physical  measurements taken, such as height and weight. To ensure that the program gathers information from all types of people, especially those who have been underrepresented in research, not everyone will be asked to give physical measures and samples. In the future, participants may be invited to share data through wearable devices

and to join follow-up research studies, including clinical trials.

 

Also, in future phases of the program, children will be able to enroll, and the program will  add more data types, such as genetic data. In addition, data from the program will be

broadly accessible for research purposes.

 

Ultimately, the All of Us Research program will be a rich and open data resource  for

traditional academic researchers as well as citizen scientists-and everyone in between.

 

NIH has funded more than 100 organizations throughout the U.S. to be partners in the program, including the Delta Research and Educational Foundation. DREF is providing support by raising public awareness about the program among African Americans in 12 designated cities. In conjunction with the National Launch Day, DREF has promoted May 6 as " Research Matters Awareness Sunday" to the Faith-Based sector in Albuquerque, Birmingham, Nashville, Memphis, New Orleans, Houston, Portland, Sacramento, Durham and Greensboro (NC), and Columbia and Greenville (SC).

 

On the program's May 6 launch date, the All of Us Research Program will host special events in diverse communities around the country. People may also take part in 

social media activities (#JoinAllofUs) or tune in at  https:/ / Launch.JoinAllofUs.org 

to watch speakers across the country talk about precision medicine and the power of volunteering for research.

 

To learn more about the program and how to join, please visit

 http:/ / / bit.ly/DREFResearchMatters or https:/ / www.JoinAll ofUs.org.  For more information about DREF, visit, www.deltafoundation.net.

 

All of Us is a registered service mark of the U.S. Department of Health Human Services (HHS).

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Contact:  Joanne Williams ● 215-519-2831 ● jlwilliams@barrington-associates.com

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